Sorry it's taken so long to get back to everyone. Fact is - I really hate talking about all this. Complaining makes me feel sicker, if you understand. The CT test results are back in - and they provide some clarifications....and none at all. Let me explain: the skeletal CT showed I have one crushed disk, 2 bulging ones and a possible fractured spine. The fracture could be recent – or from one of my two bad accidents – there’s no telling at this time. I'm being sent to a neurosurgeon that will presumably send me in for an MRI to confirm the diagnosis. Doesn't matter - I will not be going in for surgery any time soon. They can treat the fractured spine with braces and bed rest - but that's it. I've already suffered through more surgeries than any normal person should ever have to endure. I wake up in the middle of them; you know (surgeries) - have every time. Only once did the anesthesiologist listen to me and take the time to monitor my brain waves. When I started to come out - he was able to put me back under pronto. The others never did. I just woke up, and few noticed or cared. I cannot risk that happening again. You have no idea what it's like to be frozen under the grip of the paralytic drug they give surgery patients, unable to move and tell the surgeons you are awake and feeling every cut. It's a wonder I didn't lose my motherfucking mind. So no. No surgery. I'd have to be in extreme straights to ever allow it - especially where I live. The nearest hospital's death rate is triple what you'd normally expect (even considering the bad health care we have here in America). No - I'd rather not be dead, thank you.
As for the rest....the CT was 'inconclusive'. Nothing showed up to explain away my terrible stomach and abdominal pain. So....its back to the original 'guess' of IBS coupled with severe endometriosis. The endometrium has most likely infiltrated all my internal organs (intestines included), binding them tightly together. That means every time I shift or move, my organs get tugged or pulled on as if they were bound together with ropes (which is how the endometrium resolves itself outside the uterus). There is also most likely quite a bit of scarring (which only adds to the pain). I knew about the endometriosis 20 years ago - that and the fact that I have multiple uterine fibroids. I had laparoscopic surgery done on one of my ovaries back then, allowing the doctors to take a good, long look at my innards. The severity was noted, and I was advised then and there to have a complete hysterectomy. I said no, not wanting to risk possible breast cancer from the artificial hormones I'd be forced to dose myself with for the next ¼ century. Now I rather wish I'd taken the chance. My GYN says I'm at too great a risk for the surgery now - so she wants to deal with the fibroids by burning them out. It’s barbaric, actually. The doctor essentially cauterizes the inside of your womb. I’ve spoken to a friend who had it done. She said it hurt like a son-of-a-bitch (both during and after) – and had she a choice, she’d never undergo it again.
So – that’s where everything stands. There are more tests I have yet to endure. One possibility is to have a look around inside with a laparoscope (again) – see what damage may have been done by the endometriosis – check if there may be something that was missed in the CT. In the meantime – I deal with the pain as best I can. That’s why my postings are sparse. I’m dancing as fast as I can here folks - really! And there are many good things happening. I was recently asked to Front Page over at Blondsense (thank you Liz!!!); my book with Kelley is nearing the final stages before publication (there’s some editing to do). There are also a couple other writing projects I have feelers out for (both genre fiction and autobiographical short story). So I’m actually busier than my health seems to be allowing me time for (you can add in managing an unwieldy household and recalcitrant critters to the mix).
Well - that's the down and dirty. Like I said - I HATE talking about all this. It makes me sound like some complaining old biddy - which is light years away from who I really am. The physical limitations have me crazy, you know. I can't even stand for more than ten minutes before losing all feeling in my legs (my spinal problems). That of course effects walking. I can make it across the house, but that’s about it. It's a bitch and a half - and it fucks royally with my mind. I get really depressed at times. I went from an over-active over-achiever who regularly worked 17 hour days, to someone who can't even bend down to pick a pill up off the floor. I try and keep a bright attitude – but it’s really hard to do sometimes. There are days when the pain gets so bad I wish I could pull a Peter Ibbetson or Luis Molina and retreat into my own personal dreamland. Not possible, I’m afraid – so I write instead.
And there’s been one other consequence to all this. The pain has isolated me. It can hit without warning, and with a strength that leaves me gasping on the floor. You try explaining to someone in a store or on the phone why you suddenly have to immediately go; and no, there’s no need to call an ambulance. On the phone it’s especially hard. People cannot see how badly I hurt. They take umbrage if I suddenly say I have to go - NOW. They demand an explanation. There’s no way to politely extricate myself from the conversation. Even people who know me, but haven’t seen the consequences of my pain take it personally when I just hang up. I haven’t time to be polite, you see. The pain literally takes my breath away – I can hardly talk. Often I’m left screaming, praying it will pass. I know it’s hard to imagine unless you’ve been there. I’m told the pain approximates childbirth – you pant for breath, waiting for the spasms to pass. It’s even considered worse, if you can imagine. So here I sit – rendered immobile by my pain, locked into a lifestyle I hate – no exit; my own personal hell. Sartre had that right.
Anyway - I’d really like to thank everyone for all the emails. Your concern is greatly treasured, my friends - truly. Please know that I keep you all in my prayers. Please keep me in yours. And please be patient with my postings. There are times when it’s not that bad and I can write regularly. Then there are times like the last few months – when I hardly have moments in which to think. Life can be so unexpected – can’t it?
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